It was probably 1965 when I did my co op job at Fairfield
Hills State
Hospital in Newtown , Connecticut .
This was a huge state hospital campus housing thousands of inpatients
from all over the state in need of (mostly) long term custodial psychiatric
care. Although this was decades ago,
many of my memories of this time are fresh and crisp. It was one of a few
experiences that shaped my interest in becoming a mental health professional.
The setting, a large institution in rural Newtown ,
Ct. , was woefully isolated for two young women in
their early 20 's dispatched by Antioch
college to fulfill their co-op job requirement. We hung out with some other co-op
students from Boston
and two male psychologists doing their internship at the hospital. Gimlets at weeks end with the psychologists
were all that was available for “partying.”
There was basically no town in Newtown , as I remember it. We had
to catch a ride into NYC if we expected much fun.
My memories of the facility where we worked, me as an occupational
therapy assistant, my friend J. as an art therapist, are quite positivE, however. The woman under whom I worked was a consummate professional. She
was highly skilled at creating a program for people who were severely mentally
ill and compassionate in her attunement to each individual. I learned a lot from her. When I
wasn’t working directly with patients, she sent me down to read case records.
On one of those occasions I accidentally discovered that one of
the in-patients with whom we worked had come to the hospital voluntarily, for a short period, had somehow
gotten lost in the system and was now a long term resident. Tommy was not psychotic, he had come to the hospital for the treatment
of depression. Over time he had come to look like he belonged there and did not
have anyone to advocate for him. He was heavily medicated, and a physical
impairment made him look much sicker than he was.
When I shared this with Madelyn, my boss, she got busy, had him re-evaluated
and in short order, "sprung" from the hospital. Tommy was the poster boy, you might say, for
“institutionalization.” The system had
swallowed him whole. It was only a lucky accident that freed him.
Madelyn was not alone among the staff of competent and compassionate employees. This was a good facility. Some people got stuck, but most were there because they needed the shelter and the supervision. Many had nowhere to go. Larry was an example. He was in the end stages of Huntington's disease, a neurodegenerative genetic disorder (the disease that Woody Gutherie succumbed to) with no cure. The end stage was often characterized by psychosis.
Larry was a very sweet, bright guy. He had been a working jazz musician in his
prime. Now he had a hard time walking,
controlling the jerky movements characteristic of Huntington’s disease. And he had psychotic episodes. He needed the care that the hospital offered and had few or
no other options. Madelyn was very fond
of him and took good care of him.
Patients like Tommy inspired the civil rights activists who felt
that the mentally ill were unjustly stripped of their legal rights and were often
incarcerated against their will. They
became “institutionalized” and were unable to care for themselves out of the
hospital only because they had been socialized to the hospital setting. In Tommy’s case all of this was true.
But they forgot about Larry, and so many other patients who
derived protection from the system, not exploitation and abuse. Sadly, Larry
needed the care and protection that the hospital provided.
How strange it is for me to meld my memories of Newtown with current
events, in which how to care for the mentally ill is heartbreaking front page
news. My
memory is also vivid for the sweeping policy changes and paradigm
shifting of the late 60’s and 70’s that emptied the state hospitals, filled the
streets with the homeless mentally ill, and made it next to impossible to care
for the seriously mentally ill in any viable custodial arrangements.
In the name of freedom,
we forsook the mentally ill decades and decades ago. Instead of re-thinking the system, we
jettisoned it, de-funded it, and provided nothing to take its place.
I join my voice to all the others calling for a humane
reconsideration of our responsibilities to the seriously mentally ill.